Best Gifts for Rheumatoid Arthritis 2020 Edition

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If you have a loved one with Rheumatoid Arthritis (RA), you have probably noticed that it comes with its own set of challenges. Aching joints, exhaustion, and physical limitations are likely to rule their lives. Give them the gift of relief this year! We polled 100’s of RA patients to find out what they wish for. Here’s what they asked for! From gifts to keep them warm and toasty to gadgets that will help them get things done, our readers had a ton of great ideas! Read on to find out what your arthritic loved one would be overjoyed to unwrap this year!

Topping the wishlist this year, and hitting this writer right in the feels, the number one requested gift in 2020, by a landslide, is time with the ones they love! The prolonged isolation from grandchildren, adult children, parents, friends, and all of their people has taken a toll. Holiday traditions have taken a hard hit. The result? What they’d like most of all is the magical gift of your presence.

Since the….let’s just call it 2020 chaos, shows no sign of slowing before year’s end, and many RA patients take immune suppressing medications that leave them vulnerable to that which shall not be named (look I am willing to try anything to weaken it’s power at this point), they understand that an in person visit might not be possible. That said, it’s still at the top of the list, so consider how you can be there (safely) for them.

Consider planning a visit if at all possible. The love you share and the memories you make will be well worth the time and effort it takes to make that happen, even if you have to spend 2 weeks hunkered down at home first to be sure you’re not contagious. If that’s not possible, consider ways you can visit from a distance; video call, write letters, have food delivered and have dinner “together” online, plan a virtual family game night. You may have to get creative to create the “togetherness” they are yearning for.

If you can’t be there, because realistically that is going to be the case for a great many people, consider sending your loved one the gift of warmth. While not quite as lovely as a hug, rheumatoid patients agreed the thing they wanted most was a heated wrap, bonus points if it is portable!

Beautyrest Ultra Soft Sherpa Berber Fleece Electric Poncho Wrap Blanket Heated Throw with Auto Shutoff, 50″ W x 64″ L, Tan Plaid

Knowing that nothing ticks arthritis off more than getting “chilled to the bone” in chilly winter weather, there were many other wonderful gifts on their wishlist to keep them warm, including these cozy heated gloves, heated socks, or a nice heated carseat cover.

To help soothe chilled bones at home they asked for electric blankets and heating pads, or how about this amazing portable sauna? (Yes please!) Basically, if it makes heat to make you warm and cozy, it’s a great gift for all of the arthritis sufferers on your list.

Considering their obvious love of all things warm and cozy, it is not at all surprising that the next most frequently asked for gifts included a pile of warm and cozy socks and slippers. Leaning into the 2020 lougewear trend, leggings and pj’s were also at the top of their list.

For those increasingly rare times they need to leave the house, RA patients asked for warm gloves and mittens and comfortable shoes like these Clarks CloudSteppers, hands down my personal favorite shoe, I like them so much I have them in three different colors.

If your loved one struggles with bulky winter coats, consider a nice warm poncho, for ease of wear. It is essentially like wearing a blanket, and as we already know, they LOVE blankets!

Speaking of things they love to wear, consider picking them up some compression gloves, knee sleeves, or other compression gear. Whatever body part they have that could use a little extra love and support, there is probably compression wear for that.

Chronic pain being one of the primary symptoms of rheumatoid arthritis, anything that will offer them a bit of relief would be greatly appreciated. The remedies that RA patients swear by include many mentholated creams, like Biofreeze. The most frequently asked for topical remedies were CBD oils and creams. Other great gift options for pain relief included bath soaks like this delightful mango soak from Scentsy or Dr Teal’s epsom salts.

To chase away the pain, those surveyed also asked for hand and foot massagers, massaging chairs, and therapy balls. Want to really make their day? A gift certificate for a massage is sure to bring them comfort and let them know you want them to feel their best.

Looking to really wow them? The dream gift among those surveyed was a hot tub! Hot tub a little out of your budget? How about a nice hand spa or foot bath instead?

Life with RA often involves a good deal of struggle with getting the little things done. Pain, inflammation, and changes in joint structure can make the simplest things a big challenge. Gadgets that can help to make those things easier will be greatly appreciated.

At the top of that wishlist were electric can openers and jar openers. I love this jar opener so much I bought a second one to keep at my Mom’s so I don’t need to ask for help there either. Other great kitchen gadgets include electric pepper mills, a Kitchen Aid stand mixer, and this amazing Rotato peeler!

For help outside of the kitchen, a lifting seat or recliner would be a great gift for your loved one who finds getting up to be a struggle. Other wonderfully helpful tools include chunky ergonomic pens, lever doorknobs, and this cool pen mouse.

Since we started out our list talking about how isolated your vulnerable loved ones are feeling this holiday season, it seems fitting to wrap up our gift guide with a list of things to help them stay entertained at home. Topping that list were gadgets that make reading easier on the hands like the Kindle Paperwhite, this amazing bookstand, and these adorable page holders. Consider keepiong those readers entertained with a subscription for a magazine, audiobook, or book of the month club.

Other great suggestions include gifts to pamper them through the long months ahead. Perhaps they would enjoy a selection of delicious teas/coffees, there are even subscription services for that. Think about the things they enjoy, you’ll likely find someone, somewhere who offers a monthly subscription box. Not sure what they would like? How about a Spoonie Box Subscription? Loaded with goodies for chronic illness fighters, it is sure to be a big hit month after month.

While the 2020 chaos might change everything, including your traditions, this year, that doesn’t mean we cannot show our isolated loved ones how very much we appreciate and care for them. A little creativity and extra effort is sure to go a long way. May your days be merry and bright and may all your test results be negative. Happy Holidays from the TenaciousME family.

What Your Loved One With Rheumatoid Arthritis Wants You To Know

One of the most frequent troubles Rheumatoid Arthritis (RA) patients struggle with is being understood.  If you don’t have RA, it is a little hard to imagine what it is like.  The morning stiffness that sometimes sticks around all day.  The painful swollen joints, the deep fatigue, the stress of finding treatments that work and the load of side effects that often come along with treatment, make for a complex life.  A life that is often also lonely as mobility becomes a challenge.  Loneliness that is even deeper when friends and loved ones do not understand what they are dealing with. We polled hundreds of rheumatoid arthritis patients to find out what they wish their loved ones understood about RA.  Here are a few things your loved one with Rheumatoid Arthritis wants you to know.

It isn’t arthritis

A common misconception due to the name and a general lack of knowledge about the disease, Rheumatoid Arthritis is much more than arthritis.  While stiff joints, joint pain, and joint deformities are indeed a big part of how RA shows its teeth, that is far from the only area this autoimmune disease impacts. 

RA is a systemic disease; this means that it attacks the entire body.  Heart and lung tissue, tendons, eyes, vocal cords and muscles are also on the possible hit list for RA.  It brings with it increased risk of cardiovascular disease, lung disease, various forms of cancer, wasting sickness, blindness and so much more.  Unchecked, Rheumatoid Arthritis is deadly. 

Managed, it is still chronic.  The most common and persistent symptoms of disease activity are pain, stiffness, fatigue, depression, and brain fog.

Treating RA is complex, frustrating, and frightening

Fighting a chronic, debilitating disease like RA can sometimes feel like a full-time job.  Medical appointments, treatments, diet and exercise regimens to keep the disease in check often dominate the lives of patients.  Because even among professionals, there is a great deal of misunderstanding about the scope of the disease, patients often have to fight for the medical care they need.  Successful management takes a team of professionals including rheumatologists, orthopedic doctors, physical therapists, massage therapists, psychiatrists, and various other sorts of doctors when heart, lung, eyes etc. become impacted. 

Medical treatments involve medications that shut down various immune reactions, leaving patients vulnerable to a host of issues.  (If your loved one with RA cringes when someone in the room sneezes, this is why!) Frequent battles with infections and microbes are par for the course. 

The possible list of side effects on these medications include increased risk of cancer, nerve damage, liver failure, kidney failure, hair loss, fatigue, blood sugar abnormalities and even destruction of bones.  Treating the disease often feels as dangerous as letting it do what it will.  Patients are forced to choose which side effects and symptoms they can live with, and to hope none of the ones they ignore kill them in the end. 

There is no one treatment that works for all.  It is all a process of trial and error.  Unlike many of the symptoms humans commonly face, there is nothing that eliminates symptoms for everyone.  Every body responds differently to treatment.  It quickly starts to feel like a game of medical roulette, will this help, or will it destroy a vital organ?  Only time and trial will tell. 

There is no one treatment that works for all.

This medical mystery and frustration is doubled when faced with those who, with the best of intentions, fill them with false promises of miracle cures.  The fact is,

There is no cure

Knowing all the dangers associated with active RA, you’ve likely poked around online, talked to friends, maybe even health professionals, about how your loved one could feel better and be safer.  Probably more than a few have suggested diet, exercise, herbs, various medications and supplements, all with promises to cure Rheumatoid Arthritis. 

Something that you really need to understand and come to terms with is THERE IS NO CURE.  This disease is chronic, it is not going anywhere.  While it is true that many of the recommendations will make life with Rheumatoid Arthritis and disease management easier (If you consider restrictive diets and piles of supplements easy), none of those things will ever cure RA. 

Once it is activated, there is no stopping it.  The best any medical treatment or natural approach is likely to do is slow it down.  In a small percentage of patients, times of “remission” may occur.  Some are even able to stop medications and continue to be in remission. These cases are few and far between, and so far, none have lasted. RA always flares up eventually.  Even on the most restrictive diets.  Even when you do yoga daily.  Even on medications with terrifying side effects. 

So, while they appreciate that you want to help them feel better, please keep that miracle cure to yourself.  They have heard it all before, they have probably tried it all.  They are doing their best to manage their disease.  What they need from you is understanding and support, leave the miracle cures to strangers on the internet. Trust me, they will get that little tidbit somewhere, and they won’t be annoyed with you for suggesting kale can cure RA. 

They want to be able to do it all, they just can’t

Probably most important thing for you to know is that they are still the same person they were before RA came calling.  They have the same dreams and desires, love the same activities, and truly want to live the life they lived before diagnosis.  Sadly, quite often that life quickly becomes out of reach as managing RA and all the physical challenges it brings, forces them to change their lives. 

They don’t have the same stamina, the pain wears them out, their bodies don’t function like they used to.  Its more than pain, its debilitating muscle weakness, exhaustion, and remodeling joints.  Whenever you feel annoyed that your bestie just can’t now, imagine how badly she feels about that. 

Imagine you woke up tomorrow barely able to shower and dress yourself.  Still think they need to just suck it up and go out with you anyway?  Imagine you also woke up to find out you’d been injured by a hit and run driver in the night.  That is life with Rheumatoid Arthritis.

What they can do today, they might not be able to do tomorrow (and it frustrates them more than you)

Perhaps the most challenging aspect of managing autoimmune diseases like RA is the way symptoms can change so much from one day to the next, or one end of the day to the other.  Pain and inflammation flares and calms in sometimes completely unpredictable cycles.  A knee that works perfectly in the morning may be stiff and useless by afternoon. 

To an outsider, not living in a body that can now and truly can’t later, it is hard to imagine why rheumatoid patients cancel plans when they do.  Yesterday you saw them at the gym, and they were fine, it is easy to understand why you find their claims that they can’t walk today suspect.  But this is the reality of life with RA. 

When they say they can’t, they mean it.  Believe them and try to be sympathetic.  They wanted to join you, they really did plan to enjoy that day out, but they are not in control of when they can and when they can’t.  They live their lives at the mercy of unpredictable bodies.

The fact is, cancelling plans disappoints them more than it disappoints you.  They do it all the time and its never because they don’t want to leave the house.  They have cancelled dinners, dates, shopping plans, medical appointments, days of work, showers, projects they wanted to do. The list of times they have felt the guilt of cancelling because they woke up in a flare are endless.  It makes them feel weak and useless. They never feel as though they are in control.  It is unimaginably frustrating.  Let them know you understand their frustration, be disappointed alongside them, not disappointed in them.  They have the self-disappointment covered. 

Everything is more challenging than it used to be

It is hard to imagine life with RA unless you’ve lived it.  A systemic disease, it impacts every aspect of life.  Unlike the more common Osteoarthritis that comes with wear and tear as we age, RA can impact even the least used joints in the body. Joints you don’t even probably realize are joints. 

It does so in a very chaotic manner.  There is no real rhyme or reason to what it hits and when it hits.  Inflammation can pop up at any time, leaving joints swollen, hot to the touch, stiff, and painful.  Anywhere in the body.  From jaw hinges to the tiniest of toe joints, any body part can suddenly become useless and painful to attempt to move.  This causes every aspect of life to become a challenge. 

From brushing your teeth to walking out the door each day, you move a surprising number of joints.  Imagine if each of them felt as though they were welded shut.  If you’d like to see what that is like, take a long rope, wrap it around your dominant hand so it cannot open all the way, now, wrap it around your elbow, then secure it to your waist.  Be sure not to leave enough slack to raise your arm.  Now, go ahead and get washed and dressed.  Did I mention that you also cannot reach your feet today?  Hope you have slide on shoes and don’t mind going without socks, otherwise you better leave 30 minutes to figure out how to get those feet dressed.  If you had RA, all those restrictions would also be punctuated by pain. 

Since we are getting dressed, let’s take a look in that closet for a minute.  Remove every item with buttons or snaps.  Hands ravaged by RA, the number one symptom of the disease, cannot manage buttons and other fine motor tasks.  Many an RA patient has made the mistake of struggling to button their pants only to find themselves unable to unbutton them at the crucial moment.  Yes, sometimes we pee ourselves, trapped in pants we cannot undo.  There is nothing much more humbling than being trapped in pee soaked pants.  So, let’s just remove those from the wardrobe.  Also, remove anything with a small zipper pull, also a fine motor skill, zippers are another great way to become trapped in your own clothing.

Next, let’s take a good long look at that collection of shoes.  Remove anything that ties, you can’t reach the laces.  Heals are a no, your toes won’t tolerate a heal of any height, toss those to the side.  Because your feet are going to swell, and may already be changing shape, also get rid of anything with a narrow toe, pointed toe, or slim instep, you’ll never get them on.  How’s the shoe collection looking now?  If you’re anything like I was when diagnosed, you’re down to a couple of pairs of clunky slip on shoes.  Did I mention you’re attending a wedding this afternoon?  Fantastic. 

Speaking of weddings, let’s move on to accessories.  See that collection of pretty hair ties, barrettes, clips and other things to add a little flair to your hair?  In the bin it goes.  Don’t worry, the hair will go soon enough, either because it is falling out (a symptom of RA and also a side effect of many RA medications) or because you can’t brush and wash it so you’ll get it cut short and manageable.  Speaking of manageable, that jewelry box full of necklaces and bracelets with tiny clasps?  Save it for your grand kids, give it to goodwill, you can’t put it on.  Same for rings, with fingers that swell when they want to, rings are another great way to get stuck.  If you don’t want to have it cut off later, leave it in the box. 

At this point, you likely have a massive pile of things you can’t use anymore.  Among them, likely some of your favorite things.  Frustrated and sad?  Welcome to life with RA.  That was only what changed in the area of personal care.  Notice we never even entered the kitchen or approached any household tasks. 

It turns out, life with RA is full of obstacles. Literally every aspect of life is more of a challenge and many things are simply impossible without some sort of adaptive device.  The world is full of doorknobs that can’t be turned, bottles and packaging that can’t be opened, stairs that make knees groan, the list is endless, obstacles are everywhere.   And chances are…

They hate asking for help

Now that you’ve taken a walk in their clunky slide on shoes, you probably realize there are many times they are going to need help.  So many, in fact, that chances are, they are not going to ask every time they need it.  If they are stubborn and independent, they won’t ask for help a fraction of the time they need it.  They also might not be inclined to let you help.  Even on my worst day, I am not interested in help dressing myself.  It feels too personal, too much like something a toddler could do, in short, it makes me feel incapable. 

They don’t want to feel incapable.  They do need help.  Offers of help from you, really make their lives easier and make them feel loved and seen.  It may be no big deal to you to bend over and pick up those dirty clothes they’ve been staring at all afternoon, to join them in the kitchen and offer to cut the veggies, to offer to help put on that necklace that makes their eyes sparkle.  To your loved one with RA, those offers of help are offers of love.  They are understanding and empathy.  They appreciate them more than you will ever know.  It may sometimes be hard to tell because

Pain rules their world and sometimes their attitudes

There is really nothing that alters someone’s sunny attitude like chronic pain.  It is hard to be positive when you hurt literally all of the time.  When all you want is a break from the constant ache of your inflamed body.  It is not at all uncommon for chronic pain sufferers to lash out, become depressed, or both.

On days when pain is more intense, this can become particularly troublesome as your loved one becomes their least lovable self.  Try to be patient and understanding.  Know that what appears to be anger and frustration with you is actually anger and frustration at their own body.  Possibly at themselves, as they beat themselves up for that sugary treat they ate yesterday, the exercise they aren’t getting and all the other little ways they might be contributing to the symptom flare. 

Know that what appears to be anger and frustration with you is actually anger and frustration at their own body.

The truth is, it might be something they did, or it might not.  Maybe it was that slice of cake that tipped the scale from a daily pain level of 4 to a holy shit, can we just cut my hand off now 9.  Maybe it’s the weather, maybe they did too much yesterday, not enough, slept wrong, didn’t sleep.  Possible triggers are everywhere, they don’t understand why they hurt, it is incredibly frustrating.

It’s also exhausting.  Imagine walking around with the flu all the time.  Body aches, exhaustion, brain fog, these are the most frequent and pervasive symptoms of RA.  Sleeplessness due to pain and restlessness brought on by medication side effects are also a factor, as the more tired people are, the less tolerant they are of all life’s challenges. 

Even good days are full of pain.  It is the most persistent symptom your loved one with RA lives with.  And no, Aleve doesn’t touch it.  Narcotics don’t even touch it most days, not that those are an option for chronic pain sufferers, the dangers of long-term use are too high.  They’re left to fight the pain with various over the counter remedies.  They learn to live life in pain, to push through days and nights, hoping tomorrow will be better, as they toss and turn on a sea of pain.  It is exhausting and undoubtedly increases the other most persistent RA symptom, fatigue.

Fatigue is more than feeling tired

Like chronic pain, chronic fatigue is a bit hard to imagine unless you have experienced it.  I used to think it meant you felt tired a lot.  I didn’t understand just how exhausted a person could feel until Rheumatoid Arthritis really reared its head.  I still find it very challenging to put into words.  Imagine you wake up underwater, but able to breath.  Every movement feels as though you are dragging yourself through water or better yet, maybe it’s a good thick syrup.  You also feel vaguely drugged, like waking up from anesthesia.  You’re awake, but definitely not firing on all cylinders.  If you’ve ever battled the all-consuming sleeplessness of caring for a sick newborn, imagine that had been 6 babies, and you were all alone, for weeks, that’s fatigue! 

Exhaustion, brain fog, memory lapse, an inability to string thoughts into coherent sentences, all aspects of fatigue from RA.  It can occur with or without proper sleep.  You can sleep 10 hours a day and still feel fatigue.  A kind of exhaustion that is unrelated to how much rest you get, there is little your loved one can do but hold on and wait for it to pass.  While taking a nap might help a bit, they will undoubtedly wake up as tired as they are when they lay down.  It’s a symptom that will go when it is ready and come back when it pleases.  It is one of the more frustrating challenges RA brings to the table.

The thing they need most from you is understanding

With a life filled with challenges, fatigue, pain, insomnia, and frustration it is easy to see that what your loved one needs most from you is understanding.  They are juggling a rather heavy load, they often have to drop the ball to keep moving ahead, be okay with that.  Pick up those dropped balls when you can. 

Watch for the things they really struggle with, offer to take them off their plate, or, better yet, surprise them by getting it done while they take a much-needed nap.  Encourage them on the hard days.  Take time to appreciate the things they accomplish and celebrate the good days with them.  Be a sympathetic ear they can turn to when the days are harder.  They often feel alone in this disease, be the one they can turn to for understanding. 

New Year New You?

Has anyone else noticed a shift in the tides?  Generally, this time of year we are bombarded with hype about resolutions and crushing those goals to finally change that thing you don’t love about yourself.  I don’t know if it’s because we did so much changing in 2020, or if we finally found the sense and empathy to toss out the whole “It’s a New Year you better be a better person NOW” mentality, but whatever the reason, the shift is nice.

Don’t get me wrong, I am all for self-improvement, in fact, I am quite sure it’s what we are here for, to learn and to grow, to be the best we can in the lives we chose to live.  Whatever that best is.  What I don’t believe in is new year new you type “resolutions.”  In fact, I don’t believe in resolutions at all.  I believe in goals and intentions, that we should always have a few set and be moving toward achieving them.  There is no reason whatsoever that starting the work needs to start January 1, or Monday, or after the next holiday, or after you go do that thing where you know you’ll be tempted.  Change, real, lasting change, happens over time, not at the stroke of midnight on New Year’s Eve. 

To change the habits that left us where we didn’t want to be, we will have to try, fail, revaluate, try again, probably stumble some more, possibly fall off the wagon entirely, look at the wagon for a long time and consider what being on it looks like, consider catching hold and trying to stay in charge of our actions and then follow through.  Repeatedly if it is a longtime habit.  That’s why New Year’s resolutions are like poison to me.  It’s just a set in stone goal that you will fail to meet immediately, which then makes you feel like you couldn’t do it, because it’s a new year’s resolution, everyone has one, and look at those people crushing theirs. 

Change happens after we stumble, and it sticks because we figured out how to stop stumbling.

Keep in mind that the idea of a new you is insane anyway.  We can’t be new.  We can improve, we can get healthier, lighter, faster, be more present, more on time, we can change practically everything about us if we want to badly enough. But, we are still who we are.  We are the sum of all the versions of ourselves we’ve been.  Remembering that while we set goals is a big part of setting ourselves up for success.  When you are setting goals remember, the changed you is in the future, she’s not here yet, so don’t set yourself up for failure by expecting yourself to act like her.  You’ll get there, but for now, being realistic about the person you are working with will make changing more successful. 

Get your Free Printable Symptom Journal here!

One of the ways you are going to set yourself up for success is to create realistic goals and a plan to get there.  Where many trip themselves up is by making the goal the plan.  If the goal is to eat healthier, the plan can’t be eat healthier…that is where you want to be “eat healthier” is a finish line, a goal post.  A pretty vague one at that.  If the goal and the plan are the same, you’ve left yourself no room to grow and change.  You’re asking for some of that stroke of midnight change, tomorrow I will be a person who eats healthy is what you are saying.  Guess what?  Tomorrow you will be the same person who struggles with healthy eating, so leave space for that. 

Break that goal down into achievable chunks.  Small steps add up and create lasting change.  If the goal is to exercise five days a week, start out with one or two.  If the goal is to “eat healthier” (first define healthier because that is not very specific) consider the small changes you can make to get there.  Maybe you can cut out that afternoon candy bar or trade soda for water.  Maybe you prefer to put your focus on getting one nutritious meal a day. 

You probably know the things you need to change.  Just don’t set yourself up to fail by asking yourself to do it all in one swoop.  If it was that simple, you’d have done it already.  Which brings us to the last bit of advice on creating lasting change.  Habits are hard to change.  A fact we tend to lose sight of during the new year new you frenzy, change is HARD.

Doing whatever you usually do, even if it is causing you actual pain to do it, will always feel like the easier option.  Be prepared for that.  Know that the bad habit will call you like a dear old friend.  Since you are only human, sometimes you are going to listen to that call.  It will be easy and probably comforting to slide back into that old pattern.  When you do, don’t waste time beating yourself up about it.  Know that it is part of the process.  Think about why it happened, plan to avoid it next time if you can.  Then get right back to working on that goal.  No waiting until next Monday.  Start right now. 

GoodBye 2020

What a year! It is probably safe to assume this one will make the history books. Between the virus that shall not be named, the economic and job insecurity that followed, school closures, work relocation from office to home, murder hornets, earthquakes, fires, and social upheaval, we have certainly had plenty of challenges to get through this year.

First things first, let’s all take a nice deep breath, we made it!! Despite 2020 being the year of change, here we are, surviving it all. Proof that we are more adaptable than we give ourselves credit for. As we ease into 2021, hold on to that, hold it tight. You are incredibly adaptable, whatever comes next, you’ve got this, just look at what hasn’t taken you out of the game so far!

Now, I know, many of you don’t feel like you’ve got this. In fact at this moment a good many of you feel like life is a grizzly bear and you are just trying to get the damn thing to leave so you can catch your breath for a moment. And why wouldn’t you? Your head hasn’t stopped spinning from all the change, everything is new and different, your need to do list has never been longer, and you honestly don’t think you are nailing it on any front. Maybe you are doing better than you think, then again, maybe you aren’t but…you are still moving forward, take pride in that. If you were assume the fetal position and stare off into space, nobody would judge you, we have all been there. 2020 was jam packed full of reasons to just call it a day and give up. And yet, that is not what we witnessed as the year continued on its crazy track of change.

Instead of throwing in the towel, we saw people find their way, again and again. Families have pulled together and rediscovered each other. Forced to cram all of life into your four walls, we’ve witnessed incredible inventiveness springing forward to make those spaces work for you. You’ve re-prioritized, de-cluttered, and generally everyone has taken a good close look at the life they have built. Some of us liked what we found, some not so much, most found room for improvement. Without all the distractions of our fast paced lifestyles, there has been time to consider what we need to work on.

Slowing down and turning inward, we have rediscovered dreams long dead and begun to breath new life into them. We have discovered the baggage we’ve been tripping over and started the process of unpacking it. Faced with our very real mortality, we have taken a deep dive into what we need and want in our lives. Many have found ways to make those things happen, in some form, many others now know what they want when “things return to normal”. I hate to burst that bubble, but normal isn’t coming back anytime soon. It can’t get back, you have seen behind the curtain. You cannot un-know the things you discovered there. Carry them forward instead, into a brand new normal, we can build it together.

In fact, that is the beauty of this time of the year. The clean slate. Tomorrow we start an entirely new leg of our journey. What will it hold for us? What will we create there? How do we want 2021 to look? Take a few minutes to make a list of things you wish to see happen in 2021. Be sure to stay in the positive, ask for what you do want, forget the things you don’t want, they don’t fit your bright new normal world, toss them out with the clutter. This is your mission for the coming year, to do whatever you can to work toward the life you want to live. Simple right? After a complex year like 2020, we all need a little simple in our lives.

Hoping 2021 is magical and 2020 is soon nothing more than a bad dream we all shared.

HAPPY NEW YEAR!

Finding the Joy in Christmas 2020

When I was little, Christmas was a magical time of wonder. Each year the anticipation would build as we trimmed the tree and baked cookies, preparing for the arrival of the magical man himself, Santa, friend of elves and reindeer, flying through the sky to bring toys to all the good little boys and girls in the world. Christmas Eve we’d gather at my Nanny’s surrounded by the beautiful chaos of a large blended family. It was hugs and hot cocoa, warm gingerbread cake fresh from the oven, and I couldn’t wait for it to be that time of year again.

By my late 20’s the magic was missing, buried under heaps of stress and grief from all of the less magical Decembers past. I continued to go through the motions to make the magic for my kids, but for years that feeling of anticipation, that magical spark of holiday cheer, was gone. I dreaded the turning of the calendar page to December, now littered with landmines of sorrow and mixed emotions. All those happy and sad memories twisted in a tangled heap like discarded Christmas lights. Like the lights it felt like I was half lit. Every year, I slogged through it, faking it, eventually, little bits of joy crept back in, but honestly, Christmas has become a difficult holiday for me, in a good year. In walks 2020…and December damn near shut me down.

Staring down my most difficult month with none of the chaos that I’ve come to rely on to distract me? Terrifying. How would I cope without all the activity and obligations to keep me moving through the molasses that December is for me? What would force me to get up and fake it when there were no holiday parties to go to? My introvert self freaking out about NOT leaving the house to join a crowd, was a pretty big red flag in and of itself. Hold on, what in the hell are we running from anyway? For the first time in my life, I looked at what hurts in December, in one big, messy heap. I discovered two important things, 1) this is the epicenter of most of the most difficult times of my life and 2) I’ve done well to fake my way through it all this time. Splendidly, truly. It isn’t an easy time of year for me, and nobody would expect it to be. Perspective.

After counting the landmines and marking them on the map, I began to consider the ways I’ve navigated them previously, which of those tactics are healthy, and what I could do in the upside down of 2020 to smooth out my bumpiest month. Crafting, giving, reaching out to those I love, all of these fill my cup. They give me joy. So, I made plans around those things. Plans to inject joy into my month, while leaving room to also sit in the feelings when they come. For the first time, it doesn’t feel like I’m trying to sprint through December and slide into January as quickly as possible. I’m not running anymore and that might just be the most magical gift of all.

Snuffing Out Inflammation

If you’ve been around TenaciousME for a while, or have gone through the site’s menu, you’ll notice that the menu hosts information regarding autoimmune resources including nutrition and exercise. What’s different about this post is that get to write it from a different perspective. I’m not one with many autoimmune issues, I “only” have minor autoimmune issues; and that’s not to discredit the severity of anyone’s autoimmune journey.

I call mine minor because for the most part I’ve somehow have lessened the histamine effects of eating potatoes that affected me similarly to rubbing my face in my cat’s fur. Itchy, watery eyes, throat and ears would get itchy, sneezing. Tomatoes and peppers would make my stomach hurt with such sharp pains that I gave them up for almost 10 years. I also have a 2-hour window of being in the presence of pumpkin guts before I get a histamine reaction and if I eat it, I’ll lose my lunch from three day ago. Obviously, avoiding all of these is annoying but doable.

However, earlier this year, just before the coronavirus blossomed, I fell into eating ketogenically and doing intermittent fasting. And holy shit it works… when I stick to it – because let’s face it, I’m human and I like to eat all of the things, even what’s bad for me.

Since, I am assuming you’re human, too; I am here to offering insight as to why keto and intermittent fasting may help you. Know that I am not a doctor, I did not play one on TV, nor did I sleep at a Holiday Inn (stupid but a favorite commercial of mine). What I am is a certified personal trainer, certified nutrition coach, a certified behavioral specialist, and, finally, I am experienced in eating the ways of keto and scheduling my meals with intermittent fasting. Both of which fascinate me.

Hippocrates said, “all disease begins in the gut,” and we’ve seen memes telling us that “we are what we eat, so don’t be cheap, easy, or fast” and this is where ketogenic and intermittent fasting may help you. Ketogenically eating is reducing your carbohydrates (especially processed carbs), greatly increasing your healthy fat consumption, and getting in adequate amounts of quality protein. If you’re body is going to attack itself, it really should be the visceral fat that are not healthy for us to have anyway – and that’s where intermittent fasting comes in.

Intermittent fast – when done properly and may require you to touch base with your doctor, is scheduled eating and not eating. The evidence here is that when you go longer periods of time without eating, your body starts to produce ketones which is energy from stored fat. When this happens the BHB (beta-hydroxybutyrate) ketone is produced and is associated with reducing inflammation.

It does this, first by entering the anabolic stage i.e. digesting the foods you just consumed which occurs 0-4 hours after eating. Hours 4-16 you move into the catabolic stage where blood glucose continues to drop and your body starts to nibble on your stored fat cells. The fat burning stage is somewhere between hours 16 and 24 and in 24-72 hours (also called extended fasting), your body enters into ketosis and is solely using stored body fat. But wait! There’s more!

One of the best benefits of intermittent fasting is when your body goes into autophagy. This is where I love to geek out. When our bodies go into autophagy, we are literally upcycling all of our damaged cells – and yes, that take time and is not an overnight flipped switch to being inflammatory free. When our bodies transform damaged cells, it has the ability create new cells of better quality. Inflammatory response are reactions to damaged cells and when we’re fasting, our bodies use those damaged cells in order to keep us alive during the fasting process.

We’ve evolved from cavemen and we wouldn’t be here if the times when food was scares our bodies didn’t do something to survive. Because of this evolutionary enlightenment, we’ve learned that we don’t need to go to the extreme and prolong our fasts. But here’s the tricky part… We are all different in how slow or how quickly we get into the states of ketosis and autophagy. If you are accustomed to eating high carb meals and then you get into fasting, it will take you longer to get where you need to go; and this is why adding a ketogenic way of eating helps your fasting results.

We can also mess ourselves up when we enter what I call “stuff your face season” hits – aka Halloween through New Year’s. The silver-lining to this season, this year (thanks again Covid), is that we can find recipes and make wonderful holiday meals that are ketogenically approved, schedule intermittent fasting, and/or reduce the number of meals we eat each day of celebrating from 6 (if you include snacks) down to 1 or two and eating them in a short window of time – like a four hour window.

One more thing! Eating ketogenically and doing intermittent fasting are easier than you’d believe. In the long run, it’s actually economical, too. I’ve heard (and probably have said) the same thing you’re thinking… “I could never go_____ amount of hours without eating!” Here’s the funny part… You already do. Every night when you go to bed, you’re fasting. If you cut off your eating time by 7:00pm (a lot of people do this, so they don’t snack before bed) and do not eat until breakfast (7:00am-10:00am), you’re doing a 12-14 hour fast. If you only eat one meal a day, you’re fasting. Crazy, right? It’s having support that can be the trickiest part; so, if you need help with that, come over to Facebook WBFL-Coaching, like the page, share with friends.

Keep Working Out Buddies! Your Perfect Is Growing!

WBFL-Coach Angela
48-Hour Intermittent Fasting Challenge

Guest Post At WBFL

Something pretty fantastic happened yesterday! While I was at my monthly infusion appointment, my very first guest post published over at WBFL Fitness! I am excited to be starting my journey as a legit, paid writer! This will hopefully be the first of many pieces I write for other folks in the health and wellness field. Spreading my wings! Want to see what I had for the WBFL audience? Follow the link to check out the post. While you are there, don’t forget to take a look around, Angela and Stacy have some wonderful advice and assistance to help get you on track with your healing journey.

My Marijuana fueled life

There has been a lot of talk over the years about the negative effects of marijuana (cannabis) use. Chief among these, always, is laziness. Cannabis use is often associated with a lack of motivation, unemployment , and general slothery. While it may be true that the right/wrong bud can make you one with the couch, that is certainly not the general case. Used right, marijuana helps people get things done. I’d love to share a few of the things Mary Jane has helped me get done over the years. Some of them may surprise you, they certainly fly in the face of the stereotype. Of course that’s no surprise to me, stereotypes are made for breaking.

The 1st and perhaps least surprising way marijuana has helped me over the years is pain management. I can’t really remember a time before chronic pain. By my teens ibuprofen had become part of my daily diet. I can’t tell you about the magical day I realized marijuana was my answer to pain management. It didn’t happen like that. I started smoking recreationally.  It made my body and brain happy, so I used it more. Eventually it became a daily habit and I found I only needed ibuprofen on days when I didn’t think being “high” was a good option, mostly workdays. At this point, disabled and decades into chronic pain land, cannabis is my primary method of pain management, with the help of a few great herbal and topical remedies now and then. While the strains that completely eliminate my pain are few, and all definite couch potato strains, I have found most strains help keep my pain at a tolerable level, better than prescription medications ever have. 

Marijuana is also the only thing I use to manage anxiety. That too I figured out accidentally. Remember that recreational use? Those stoned times with friends helped me find my way past the social anxiety that caused me to clam up in social situations. It quieted the panic when someone asked me a direct question. I found I could talk, think and actually enjoy myself while high. A very different experience from my normal fear-filled people interactions.

With marijuana muting the anxious side of me, I could maintain control, think, articulate. It pulled things into focus and made me feel good in my own skin. Years later, it is how I know I can navigate social situations that would otherwise leave me either pukey and stressed, or absent, because I’m probably not going without a puff.

With Mary Jane pitching in on two very constant fronts in my life, I have been able to step out of my comfort zone and reached for jobs, relationships and dreams.  Marijuana was one of the keys to earning my bachelors degree. I am not at all ashamed to admit that I attended classes, took exams and studied under the influence of marijuana. It kept my pain in check and, probably more important in college, kept me socially engaged and focused. Since finishing college Mary Jane has helped me reach out and take chances anxiety would have easily talked me out of, again and again.  Helping me find that quiet space inside, marijuana gave me the peace and perspective needed to heal trauma and emotional baggage.  Since diagnosis with chronic illness, it has allowed me to keep my prescription counts around two, three if you count the marijuana (I certainly do.)  It has given me the courage to write and share my story. Settling me when anxiety is at the helm, cannabis allows me to be in control and be my best self. It helps me have the resilience to face this life. It allows me to take pain dulled walks and produces rest when I am weary. I often think of where I’d be without it.  The picture is sad and lonely, and probably littered with alcohol bottles dripping with depression, which you guessed it I also manage with marijuana.

Disclaimer- I am not a medical professional.  If you are considering using marijuana for symptom management I highly recommend you make an appointment with a doctor who understands your conditions and can advise you concerning use of medical marijuana.  If there are medicinal dispensaries in your area, they are a wonderful source of information concerning the medical properties of different strains.  Use them!

Staying Calm in an anxious world

Well, there is no doubt about it, the level of anxiety and fear in the world today is the highest it has been in decades.  Not since 911 have I seen this level of uncertainty in fellow Americans.  With restrictions and measures to control the spread of COVID-19 ramping up again and the circus currently going on in our government, the unease many of us feel continues to grow.  Uncertainty over the future of our food security, job security, and economic future weigh heavily on many along with fear for the health and safety of those we hold dear.

In times like these it is important to find ways to calm the anxiety and fear.  An anxious, fearful mind is not a well-functioning mind.  Studies have proven that fear and anxiety lower cognitive function and problem-solving skills.  In a world where both could really make the difference between making it and not, managing those feelings becomes very important.  We’re in the wilderness now, folks, time to refocus and watch for that lion, lest we become its next meal.  Luckily, there are a lot of things we can do to calm the anxiety and fear so we can focus on what is happening here and now. 

Disconnect

In these rather special and unique circumstances, the very first step we need to take to get the anxiety and fear under wraps is taking a big step back from the 24-hour news stream.  If you’ve been watching this disaster unfold all day everyday on the news and social media sites, shut it off, set it down, and walk away!  You did good to hang in this long, you deserve a break from your vigil.  Because you don’t want to be unaware if the situation changes, choose a time once, or twice a day to check in with ONE news source.  Just for the updates, just for the facts.  Please don’t choose Facebook as that news source!  Whatever newspaper, television newscast, or web-based news source you prefer, skimming it once a day will keep you informed without being constantly overwhelmed.  If you are a frequent social media scroll-er, scroll on by the pandemic pandemonium and focus on those cute kid pics, the endless amazing free virtual experiences being offered everywhere at the moment, or pop into my new favorite group Quarantine Karaoke (created by a fellow Mainer 😊 because we know how to get through tough times!) for some music and entertainment.  Unplugging from the news will help you put your focus on more positive things.  Something that is really important if you are trying to manage anxiety right now.

Breath

It is a well-known fact that controlling our breathing can help us through many things.  Breathing through pain, the Lamaze method, has long been used during labor.  Many women, yours truly included, have continued to use this well-known breathing method to control other types of pain.  But, did you know there are many other breathing methods?  It turns out there are methods of breathing for increased lung capacity, endurance, pain, sleep, stress reduction and so much more.  The simplest, and probably best-known method of breathing for stress relief is deep breathing.  Another popular method that I have been using is the 4-7-8 method, a method that has been specifically identified as a great stress reduction and focus technique.  Simply breath in for 4 seconds, hold it for 7 seconds, and exhale for 8 seconds, repeat 2-4 times, you may be surprised how much better you feel.  The best thing about this anxiety management tool is you can do it anytime, anywhere, and it takes less than one minute. 

Meditate

Since breathing and meditation go together like bread and butter, let’s talk about this ancient method for stress reduction and re-centering next.  Used in India for thousands of years, meditation has been gaining popularity in western culture over the past few decades.  Chances are, if you suffer from anxiety regularly, someone has suggested you try meditation.  There is no doubt that this ancient technique, which involves focusing on our breath and going within, is an excellent way to re-center and regroup.  If you’ve tried and failed, welcome to the club, like all things worth doing, meditation takes practice.  There are a huge number of free guided meditations available online and even apps for that.

Yoga

Another gift from ancient India, yoga is a popular and well-known form of exercise in many areas of the world today.  With a focus on stretching and strengthening many have turned to this ancient exercise to maintain strength and flexibility, but did you know it also reduces stress?  Many of the poses, breathing methods and exercises commonly used across the varied forms of yoga are also excellent anxiety management tools.  So, pop on over to YouTube, or dust that yoga workout video off and give it a shot.  It is also a great way to get kids calm and centered, so invite the whole family to join you for some morning yoga to get that day at home off to a great start. 

Take a walk

Not only is walking great exercise it is also a wonderful way to reduce your stress level.  Taking a walk alone or with your family each day is a great way to promote the release of endorphins and decrease feelings of stress.  If you are able to walk in a natural setting, that walk will be even more beneficial to your state of wellbeing.  In some cultures, regular emersion in nature is even prescribed by medical professionals to help balance the stress of busy lifestyles.  The Japanese call it forest bathing. Whether you choose to walk around the block or wander through the woods nearby, taking a walk daily will help improve your mood and, as a bonus, provide you with fresh air and sunshine, both of which help keep us healthier and more resistant to germs.

Exercise

It is no secret that exercise is a wonderful tool for stress management.  If walking and yoga are not your thing, choose something that fits you better.  Spending a bit of time focusing on moving your body, working up a sweat, and releasing those endorphins (happy chemicals) will leave you feeling better.  So take that run, dig out those exercise videos, sign up for that virtual kickboxing class, and treat your body to some happy chemicals courtesy of biology.

Spend time in nature

If walking in nature is not for you, or you have mobility limits that make that a challenge, find ways to get out and immerse yourself in nature. Take a ride to the shore and watch the waves come in, grab a portable chair and sit at the edge of a field or woods and just watch for a bit. The less active we are, the more active our animal neighbors tend to be. Use this time to animal watch, learn to identify birds in your backyard, or just sit and take it all in. Take some time to close your eyes and listen to the rhythm of the world around you. The natural world is full of life we cannot hear when we are whizzing by with our heads full of worries and lives full of plans. Taking some time to just be in nature is a sure-fire way to reduce the stress you are feeling.

Music

As the Doobie Brothers song says, “give me the beat boys and free my soul, I wanna get lost in your rock and roll and drift away.” Music is a powerful tool, the right song can make us cry, pump us up, get us moving, and even soothe our soul. Playing uplifting music is a great way to decrease feelings of anxiety and drown out the fears of the world. If you also enjoy dancing, crank up those tunes and start a family dance party! Personal favorites when I need a lift are the Red Hot Chili Peppers, Michael Franti and Spearhead, and Queen, all guaranteed to transport me to my happy place, no matter where I am. Whatever music makes you happy, crank it up, don’t hesitate to belt it out, and dance till you feel nothing but joy!

Sink into a great book

Any bookworm will tell you the hands down best way to forget your troubles and the world around you is to delve into the pages of a great book. One of my personal favorite methods of stress relief and a constant in my life is reading. Whether you love fiction, poetry, biographies, or any other type of written work, grab that want to read list and sink into the pages of a great read. Be whisked away to far off lands, adventure with your favorite hero, re-read an old favorite. Reading reduces our blood pressure, stress level, and enriches our lives. It allows us to experience things we cannot go out and do ourselves.

Write it out

Writing is more than just a form of communication, it’s also a wonderful tool for dealing with uncomfortable feelings.  Journaling or free writing about how you are feeling about the state of the world, your job, your family, etc. can help put things in perspective.  Sometimes just writing something down will allow you to set it aside and move on with what needs to be done.  It can also be a valuable tool for getting the things you wish you could say aloud but never would out of your head.  You may find once your troubles are on paper, they are easier to let go, or debunk.  Want to increase the therapeutic power of writing down the things you wish you could say?  Grab a fireproof container and light that writing on fire, and let it go. 

Talk it over

Prefer a sounding board to bouncing ideas around your own echo chamber?  A chat with a good friend can do more than just fill the time.  Talking things out often helps us to gain perspective.  Even when it does not shift the way we see a situation, sharing our troubles with someone we trust is a wonderful way to destress and let go of the things that are eating us up.  Since an in-person gab session with the bestie over coffee is likely out of the question, you’ll have to settle for a messenger vent session, phone call or video chat.  So, make a date with your favorite folks to vent to and let it out. 

Smile and Laugh

We’ve all heard the saying laughter is the best medicine.  When it comes to breaking through the stress, it really is true.  Laughter reduces our blood pressure, relieves stress and tension, decreases stress hormones and increases immune function.  A good laugh will leave your muscles feeling relaxed for up to 45 minutes according to one study.  And, as it turns out, smiling is every bit as good for us.  When we smile our bodies release endorphins, serotonin and dopamine, three well known feel-good chemicals.  As a result, the act of smiling can actually make us feel less stressed and more happy.  So, dig out those comedies, read a hilarious book, play a foolish game with your loved ones.  The sillier the better.  Giggle, guffaw, and howl till you cry tears of happiness.  You will feel ever so much better if you do.

Photo by Singkham on Pexels.com

Play

Despite the many benefits of play, as adults we do not often take the time to engage in playful activities.  Play makes us not only happier, but smarter too. Playing reduces stress, promotes feelings of joy and happiness, increases our creativity and problem-solving skills.  It is also a wonderful way to forget about the troubles in the world around us and build stronger bonds with those we love.  When the world gets to be too much, dig out those toys, go on a dessert adventure with your kids in the living room, and get out those board games for some family fun time.  Not only will you all be distracted for a bit, you’ll be happier and more relaxed at the end as well, thanks to those happy chemicals from all the smiling and laughing.

Get creative

If you’ve ever lost track of time while making something, you know the power of creativity.  The creative mind is a wonderful thing.  Being creative increases problem solving skills, decreases stress hormones, and is very much like a sort of meditation.  The troubles of the world melt away as your brain turns to creative thinking and your eyes focus on the details of what you are making and/or referencing.  When creating, brains release the chemical dopamine, known to increase feelings of happiness as well as improve focus and problem-solving skills.  It turns out even something as simple as coloring in a coloring book can trigger the release of those feel good chemicals and reduce our stress levels.  So, dig out the crayons, paint, cloth, wood, whatever you use to create and sink into a project.  Allow the world around you and all the stress it holds to melt away for a bit.

Do whatever makes you happy

Because the ultimate antidote to stress seems to be happiness, anything that makes you feel happy will reduce your anxiety and stress.  As we have learned, smiling, laughing, and creating all promote the release of feel good chemicals.  There are many other activities that result in the release of those precious stress reducing hormones and chemicals.  So, whatever it is that brings you joy, get up and go do it!  Maybe it’s a cuddle with a furry friend, a jog around the block, a tidying spree in that closet you’ve been meaning to organize, a chat with a good friend, whatever your happy place is, now is a great time to spend more time there. 

While there is not much we can do about the stressful state of the world today, there is a great deal we can do to manage the feelings of anxiety that stress brings.  Taking the time to focus on activities that reduce our stress leaves us feeling happier and smarter.  With brains that are relaxed and tuned for problem solving, getting through the current chaos will certainly be simpler.

Your Health Journey- Setting Goals for Growth

Getting that promotion, hitting you target weight, climbing that mountain, shaving a minute off your run time, we all have goals.  It seems a natural human condition, the setting of benchmarks.  Benchmarks that drive us to achieve more, do better, try harder. We look at where we are now and where we could go from here and set those intentions to level up. 

When the goal is something easily measurable, like a number on the scale or getting a promotion, the finish line is obvious and its clear when you’ve met the goal.  When our goal is something a little harder to measure, like being more present or managing chronic disease, those finish lines can be difficult to set and even harder to see.  When the goal is a bit harder to define, it becomes important to shift the focus from that intangible goal of “being better” and instead home in on the journey itself, to focus on the growth. 

For most of us with chronic disease, better disease management and more capability are ever present on the list of things we want to achieve.  Unless you are wallowing in a phase of acceptance steeped in despair, a phase I personally don’t recommend spending much time in, you are probably trying to do the things you need to do to feel better and live a more “normal” life.  Unfortunately, better and normal are not always terribly easy to define when it comes to disease management and healing. 

What does better look like?  Normal?  Is that even a thing?  One of the take home messages of 2020 has surely been that normal is entirely relative.  So, how will you know when things are back to normal?  What does better look like?  How will you know you are moving toward it?  What will let you know you are on the right path toward crossing that finish line? The answer is growth.  It’s going to be extremely important to note the small changes in how you feel and what you are able to do in order to stay motivated and keep moving forward. 

This is where journaling can be very helpful.  Writing down how you feel, what you are doing easily, what is a struggle, and other details about your physical and mental health, can help you see little shifts, good or bad, that are leading you toward your goal of better health (or away from it).  To figure out what things to focus on, it may be helpful to start by taking an inventory of the tasks in your life, as well as any persistent symptoms you wish to address.  Consider what you can do now, what you wish to be able to do in the future and the things you used to do. This will help you determine what “well” looks like to you and to set some goals to get there.

Get your FREE printable symptom journal here.

Take a few minutes now, write down what “capable” you did in a normal week.  Next, list what struggling you can do (on the worst days, no sense picking your best bad day.)  Now, and this will be really important, consider the time between “normal” and now, was there a period that you were less able than you are now?  Go ahead and make a third list if that is the case.  Once you have your three lists, take a look at what you’ve written down. 

The first thing you may notice is, there are a few things that end up on every list, no matter what life throws.  There are always going to be things that have to happen, things we will do whether we feel able or not.  Meals that must be made, messes that have to be cleaned, children that must be looked after, jobs we have to keep showing up to do.  Because these things are constants in your life, it will be important to consider tracking how able you are to tackle them when you journal.  Sure, you shower when needed, but how long does it take, how much does it wipe you out?  Tracking things like that, can be a surprisingly good indicator of how well your health journey is going.  If taking a shower used to lead to an hour laying on your bed staring at the ceiling and now you shower, dress and move on with your day, that is growth!  Big growth.  It is a small sign that you are doing much better. If you are lucky enough to have three lists, take some time comparing the now list to the as bad as it got list, I bet you see many small signs of growth.  Write those down somewhere you will see them for inspiration.  Those are the proof you are doing better, that you are indeed healing. 

Next, let’s consider what you wrote down on that “normal” list, the list of things you did before disease hit and derailed that life.  First, take a minute to cross off anything you do not want to add back into your life along with any task you have passed the torch for, no sense hanging onto things we do not need anymore.  What you have left, is a list of what your ideal “normal” looks like.  See a few possible goals?  Put a star next to the things you most want to see come back into your life.  This is what you are working toward.  Keep them in mind as you move forward, they are the goal post. 

If the goal post is too far away, consider the small steps that will take you there, and make a plan to begin to put them into action.  For example, my master list of “normal life” included getting back to nature, specifically hiking.  Coming from a place of barely able to walk down the hall to the bathroom, setting a goal of climbing a local mountain would have seemed, well a mountainous task.  So, I started with smaller goals, much smaller goals.  Goal one, was to walk a mile on a flat(ish) surface.  Once I hit that goal, I moved on to goal two, walking on uneven ground, then to walking on the beach.  It took me three years from the time of setting my I want to hike again goal, to actually getting that walk on the beach.  If not for those smaller goalposts, I definitely would have given up.  It was noting my progress, seeing my growth that kept me moving forward.  It is that growth the inspired the next goalpost, uphill trail hiking, my summer 2021 goal. 

Homing  in on what “normal” looks like for you and setting a few small (or mountainous) goals is a great place to start moving forward on your healing journey.  Noting the growth and breaking those big goals into smaller checkpoints will make that journey easier and more rewarding.  Considering where you have been, you may even find that you already have a great deal of growth to celebrate. 


5 Keys to Managing Your Autoimmune Condition

There is no doubt about it, life with an autoimmune condition is a challenge, one nobody wants but millions of people have.  While the 80+ autoimmune diseases behave differently and require distinct approaches to treat, there are a few things that are beneficial to people with all types of autoimmune disease. 

Nourish Your Body

One of the most critical areas to pay attention to when managing any autoimmune condition is nutrition.  Our bodies use nutrients for every single process they carry out, everything from maintaining proper cell function to responding to an internal threat, relies on the presence of nutrients.  Without the right micro-nutrients and macro-nutrients, your body simply cannot function properly. 

This means it cannot rebuild damaged tissues, empty out cellular waste, or stop inflammatory processes.  Managing an autoimmune condition without those functions working properly?  Nearly impossible.  Eating a balanced diet, taking a good vitamin supplement, and being sure you are drinking plenty of water will go a long way toward giving your body the support it needs.

Listen to Your Body

Speaking of your body, it is tired of being ignored.   Now I understand completely the instinct to ignore its constant complaints.  Over time you’ve gotten tired of it going on and on about the same old thing, so you’ve learned to tune it out, like a Mom with a Minecraft obsessed kid.  Unfortunately, unlike the Creeper tales of your 11 year old, you are missing critical information when you tune out.  Those persistent annoying symptoms?  That is your body begging for help.  It needs you to listen and DO something about the root cause.  Until you do, it will just keep droning on, turning up the volume as you toss and turn your way through another sleepless night.  Pay attention to those symptoms.  Start a journal to track them, if you can find the root cause, treat it, if not, work on better symptom management with your health team. 

Click here for your FREE printable symptom journal.

Be Honest About Your Symptoms

Listening to your body will not do you much good if you don’t share what it is telling you.  Life is a team sport.  Your loved ones, medical team, employer, friends…none of them can be a supportive member of your team if you are not being honest with them.  Think about the person you love most of all.  Now, imagine them quietly suffering alone.  How does that make you feel?  Do you want them to lie to you, saving the tears and frustration for themselves or would you rather they share their woes so you can help lighten their burden?  If it’s love, and you are not a grouch, you probably want them to share so you can help them.  So, why are you denying them the opportunity to help you?  Be honest about what you can do and what you cannot manage, about the symptoms that bring you to your knees and the rough days.  Let them be there for you as you would want to be there for them.

Work on Your Balance

The most challenging aspect of life with autoimmune diseases is learning how to balance the needs of your body with those of life.  In busy industrial nations, where self-worth is tied tightly to daily productivity, that can be extremely hard.   We’ve been taught that hard work is a virtue and resting is, well, not.  With the massive list of all that society has agreed we should all be capable of juggling, it is easy to see how tossing something like a demanding health condition into the act might cause all of the pins to drop.  Now you can attempt to pick all those pins up and carry on, the show must go on after all, but…if week after week the same pins are lying in a heap on the floor, you may need to consider changing the act up a bit.  Finding the balance between what you think you should be able to do, and what you actually can achieve will not only make it more manageable, it will also make you look and feel more successful.  The key to any successful juggling act after all is not picking up the knives before you’ve mastered juggling those pins.

Calm Down

Last but certainly not least, you must calm down!  Stress is the number one most common trigger among autoimmune diseases.  Luckily, if you are doing a good job of communicating what you need, asking for help, and working toward achieving balance you are also reducing your stress.  Consider the other areas of your life that cause stress.  Is there anything you can change to reduce those stressors? Can you avoid that situation or person who causes your blood pressure to rise? Is there a less stressful job out there for you? What changes can you make that would reduce your stress?

For the stress you can’t escape, what will you do to manage the stress? Exercise, meditation, writing, time in nature, breathing, all of these help reduce stress, choose a few stress relieving strategies to add into your daily routine.

Life with an autoimmune disease is no walk in the park.  It is challenging, frustrating, and difficult to manage a body that fights itself.  Learning how to support ourselves and finding our balance can go a long way toward living well with autoimmune disease.

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