Tag: chronic illness

Here I go again- revolving door healthcare

Navigating doctor turnover as a rheumatology patient That awkward moment when you are unable to take your own advice.  As a patient leader and health advocate, I often stress the importance of good doctor-patient relationships.  As patients we all need someone who listens and… Continue Reading “Here I go again- revolving door healthcare”

Exciting News!

When I started this journey a few years ago, I intended to share my personal experiences as I navigate chronic illness and the challenges that brings to the table. While I’ve done quite a lot of that, I’ve also leaned pretty heavily on presenting… Continue Reading “Exciting News!”

How chronic illness changed my parenting style

“Do you need a glass of water Mom?”  The question, from my youngest son is no surprise, he’s a very kind little man.  His response to my answer of no, however, does take me a bit by surprise.  “You never need me to get… Continue Reading “How chronic illness changed my parenting style”