Tenacious ME
Tackling disabling autoimmune disease with obstinance and humor.
Category: chronic disease
Immune Compromised In a COVID Focused World- What We Want You To Know
I’m not sure the world has ever been more aware of the existence of Rheumatoid Arthritis. Yet, still, that awareness for most is not understanding, far from. Some may know it is an autoimmune disease, or that one of the medications debated about for… Continue Reading “Immune Compromised In a COVID Focused World- What We Want You To Know”
Do You Know How To Ask For Help?
Do you know how to ask for help? You are probably thinking that Is a stupid question, of course, I know how to ask for help, but do you really? Do you know how to ask for help, or do you carry much more… Continue Reading “Do You Know How To Ask For Help?”
Battling For Care
One of the hardest things about life with chronic conditions is it feels like I am constantly battling medical professionals to get the outcome I want. I know some of those battles are a result of nothing more than my stubborn belief that nature… Continue Reading “Battling For Care”
Being Understood
“I won’t be getting much done today or tomorrow, I might do a little laundry tomorrow but probably not much more,” I say to my husband as we talk about the plan for the week and the household needs. “Oh, right, you have infusion… Continue Reading “Being Understood”
Who Is Responsible For Your Health?
I’ve noticed a somewhat alarming, unhelpful shift in the way we view health. It seems that the list of people we expect to keep us healthy includes everyone from our doctors and nurses to the president and the random dude at the grocery store… Continue Reading “Who Is Responsible For Your Health?”
Living Your Best Life With Rheumatoid Arthritis
Life with rheumatoid arthritis (RA) is certainly no walk in the park. A disease marked by chronic pain, fatigue, and damage that leads to loss of mobility, the symptoms alone can be a lot to handle day to day. Being mindful of your physical… Continue Reading “Living Your Best Life With Rheumatoid Arthritis”
don’t let chronic pain destroy your relationships
We’ve all been there, you don’t feel very well, someone says something that irritates you, and you snap their head off. Not your best moment, but as we’ve all been there, generally forgivable, every now and then. But what happens when pain and exhaustion,… Continue Reading “don’t let chronic pain destroy your relationships”
Celebrating Mobility- One Year with Frank the Tank
Have you ever made a decision that change your entire life? Approaching middle age at an alarming rate, its safe to say I’ve made a few of those, for better and worse, in my lifetime. Few have been so life altering as the decision… Continue Reading “Celebrating Mobility- One Year with Frank the Tank”
Lessons from Homeschooling with Chronic Illness
As the country turns to a home-based education, it seems like a good time to share what homeschooling has taught me this year. We embarked on our homeschool journey last September. Since then we have both discovered a great deal about learning, cooperation, and… Continue Reading “Lessons from Homeschooling with Chronic Illness”
Advocating for health
Are you an advocate for health? If you have been diagnosed with a chronic condition, or you are suffering from an undiagnosed mystery illness, you are going to need to be. The fact is, no one cares about how badly you are doing or… Continue Reading “Advocating for health”
