Tenacious ME
Tackling disabling autoimmune disease with obstinance and humor.
Tag: disability
Learning to Lean-How Adaptive Aids Improved My Life
I used to look at adaptive equipment and see it as a flashing neon sign, complete with an arrow pointing at the user (me), “This person is weak” the sign flashed, “can’t do normal things” it sometimes proclaimed. I avoided using tools made to… Continue Reading “Learning to Lean-How Adaptive Aids Improved My Life”
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The Road To Disability
Becoming disabled is not an easy road. Read on for my story.
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You Can’t Get There From Here- The truth about accessibility
Until I became handicapped myself, it never really occurred to me how inaccessible much of the world is. It may appear at first glance as though accessibility is something that people think about a great deal and put a massive amount of effort into making a reality. Sadly, upon closer examination it becomes clear that accessibility is often just an illusion, sometimes a rather dangerous one.
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Learning to Lean
When you are born stubborn and independent, it is hard to admit when you need help. So, when chronic, disabling disease comes knocking, it can be a particularly challenging house guest to adjust to.
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Wait, hope, work
“I miss an active life, pining for it, like a long-lost lover, always hoping some magical twist of fate will send it back my way. “
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Becoming a Goal Crusher
“A goal is not always meant to be reached, it often serves simply as something to aim at.” – Bruce Lee It’s that time of year again. The time when everyone is working on some goal or other for the year. Weight loss, giving… Continue Reading “Becoming a Goal Crusher”
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The Battle for Healthcare
“You may have to fight a battle more than once to win it.” – Margaret Thatcher Once upon a time there was a girl who hurt all over. She went to her Doctor, whom she trusted, in search of help. The competent Doctor figured… Continue Reading “The Battle for Healthcare”
Learning to Listen (so your body doesn’t have to scream)
Just because you CAN live with symptoms, doesn’t mean you SHOULD.
Knowing what to ignore and what to treat comes from being in tune with your body.
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Learning to be Honest
“Honesty is the first chapter in the book of wisdom.” -Thomas Jefferson Honesty is the best policy so the saying goes. And yet, is it? Well, not always, right? I mean we all have a whole laundry list of social customs in which… Continue Reading “Learning to be Honest”
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Finding a New Path
Two roads diverged in a wood, and I— I took the one less traveled by, And that has made all the difference. Robert Frost- The Road Not Taken When you have a chronic disease, the road to disability is an unpaved country road not… Continue Reading “Finding a New Path”
Tenacious ME 