Tenacious ME
Tackling disabling autoimmune disease with obstinance and humor.
Category: Medical Options
Here I go again- revolving door healthcare
Navigating doctor turnover as a rheumatology patient That awkward moment when you are unable to take your own advice. As a patient leader and health advocate, I often stress the importance of good doctor-patient relationships. As patients we all need someone who listens and… Continue Reading “Here I go again- revolving door healthcare”
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5 Keys to Managing Your Autoimmune Condition
There is no doubt about it, life with an autoimmune condition is a challenge, one nobody wants but millions of people have. While the 80+ autoimmune diseases behave differently and require distinct approaches to treat, there are a few things that are beneficial to… Continue Reading “5 Keys to Managing Your Autoimmune Condition”
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Chatting with Cheryl on the Arthritis Life Podcast
Have you ever been invited to do something that scared you, but you knew it would be good for you, so you said yes anyway? Stepped up and out of your comfort zone to reach toward a goal? I’ve been doing more and more… Continue Reading “Chatting with Cheryl on the Arthritis Life Podcast”
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Breaking New Ground at the Rheumatology Research Foundation Investigators Meeting
When I was invited to attend the Rheumatology Research Foundation investigators meeting this year as both a member of the IAC (Impact Action Council) and a Rheum Champion, I was immediately excited. Nervous, but excited. The opportunity to immerse myself in science, meet scientists… Continue Reading “Breaking New Ground at the Rheumatology Research Foundation Investigators Meeting”
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Exciting News!
When I started this journey a few years ago, I intended to share my personal experiences as I navigate chronic illness and the challenges that brings to the table. While I’ve done quite a lot of that, I’ve also leaned pretty heavily on presenting… Continue Reading “Exciting News!”
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Playing Catch- When your healthcare team drops the ball
When it comes to chronic healthcare, there are a ton of moving parts. While I am a strong believer in assembling a medical team you can depend on, someone has to take the lead. That someone needs to be you. No one on your team is ever going to know your journey as well as you do.
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Taking The Leap- My Latest Game of Medical Roulette
Sometimes, life with chronic disease means having to take a leap in hope of better days ahead.
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Chronic Illness Struggles- Is It My Disease Or Do I Need To Seek Treatment?
If you spend much time interacting with the autoimmune and chronic illness community, you may have noticed one of the most frequent types of questions asked is “Is this normal or do I need to call my doctor?” The well-meaning response of the other… Continue Reading “Chronic Illness Struggles- Is It My Disease Or Do I Need To Seek Treatment?”
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My Marijuana fueled life
There has been a lot of talk over the years about the negative effects of marijuana (cannabis) use. Chief among these, always, is laziness. Cannabis use is often associated with a lack of motivation, unemployment , and general slothery. While it may be true… Continue Reading “My Marijuana fueled life”
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Book Review- Rheumatoid Arthritis Unmasked: 10 Dangers of Rheumatoid Disease by Kelly O’Neill Young
Kelly’s story is all too familiar to many RA patients, years of mysterious symptoms that come and go at random, doctors dismissing symptoms, some even insisting she was “perfectly healthy”. It’s a tale I’ve heard again and again in the forums from RA patients… Continue Reading “Book Review- Rheumatoid Arthritis Unmasked: 10 Dangers of Rheumatoid Disease by Kelly O’Neill Young”
Tenacious ME 