Tenacious ME
Tackling disabling autoimmune disease with obstinance and humor.
Tag: autoimmune disease
Here I go again- revolving door healthcare
Navigating doctor turnover as a rheumatology patient That awkward moment when you are unable to take your own advice. As a patient leader and health advocate, I often stress the importance of good doctor-patient relationships. As patients we all need someone who listens and… Continue Reading “Here I go again- revolving door healthcare”
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5 Keys to Managing Your Autoimmune Condition
There is no doubt about it, life with an autoimmune condition is a challenge, one nobody wants but millions of people have. While the 80+ autoimmune diseases behave differently and require distinct approaches to treat, there are a few things that are beneficial to… Continue Reading “5 Keys to Managing Your Autoimmune Condition”
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Navigating Winter with Rheumatoid Arthritis
There is no doubt about it, winter with arthritis can be rough. The following tips can make it more bearable.
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My Tiny Craft Obsession
The author shares a lifelong love for crafting, from sewing to resin art and miniatures. Despite rheumatoid arthritis, they find therapeutic value in crafting. By pacing themselves and focusing on small-scale projects, they have found a way to enjoy their hobby without compromising their health. Crafting serves as both an escape and a source of strength.
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Breaking New Ground at the Rheumatology Research Foundation Investigators Meeting
When I was invited to attend the Rheumatology Research Foundation investigators meeting this year as both a member of the IAC (Impact Action Council) and a Rheum Champion, I was immediately excited. Nervous, but excited. The opportunity to immerse myself in science, meet scientists… Continue Reading “Breaking New Ground at the Rheumatology Research Foundation Investigators Meeting”
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Traveling With RA
Making any plans when you have an unpredictable passenger like rheumatoid arthritis along for the ride can be daunting. How will it behave? Will it be quiet and calm or roaring around lighting you on fire? In other words, is the trip going to… Continue Reading “Traveling With RA”
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RA Unedited #4
Here I am again this morning, standing at the intersection of overindulgence and overdoing, a little neighborhood known as massive pain. The sad part is, as always, knowing I did this to myself. Not the disease that cause the symptoms to flair mind you,… Continue Reading “RA Unedited #4”
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Exciting News!
When I started this journey a few years ago, I intended to share my personal experiences as I navigate chronic illness and the challenges that brings to the table. While I’ve done quite a lot of that, I’ve also leaned pretty heavily on presenting… Continue Reading “Exciting News!”
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Playing Catch- When your healthcare team drops the ball
When it comes to chronic healthcare, there are a ton of moving parts. While I am a strong believer in assembling a medical team you can depend on, someone has to take the lead. That someone needs to be you. No one on your team is ever going to know your journey as well as you do.
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Taking The Leap- My Latest Game of Medical Roulette
Sometimes, life with chronic disease means having to take a leap in hope of better days ahead.
Tenacious ME 