Tenacious ME
Tackling disabling autoimmune disease with obstinance and humor.
Category: chronic disease
Here I go again- revolving door healthcare
Navigating doctor turnover as a rheumatology patient That awkward moment when you are unable to take your own advice. As a patient leader and health advocate, I often stress the importance of good doctor-patient relationships. As patients we all need someone who listens and… Continue Reading “Here I go again- revolving door healthcare”
Like what you read? Show me some love, give it a like, share with a friend.
5 Keys to Managing Your Autoimmune Condition
There is no doubt about it, life with an autoimmune condition is a challenge, one nobody wants but millions of people have. While the 80+ autoimmune diseases behave differently and require distinct approaches to treat, there are a few things that are beneficial to… Continue Reading “5 Keys to Managing Your Autoimmune Condition”
Like what you read? Show me some love, give it a like, share with a friend.
Breaking New Ground at the Rheumatology Research Foundation Investigators Meeting
When I was invited to attend the Rheumatology Research Foundation investigators meeting this year as both a member of the IAC (Impact Action Council) and a Rheum Champion, I was immediately excited. Nervous, but excited. The opportunity to immerse myself in science, meet scientists… Continue Reading “Breaking New Ground at the Rheumatology Research Foundation Investigators Meeting”
Like what you read? Show me some love, give it a like, share with a friend.
Why I’m A #Rheumchampion
From the moment I first received my diagnosis, there has been this shining ray of hope. I recall one of my first thoughts was how fortunate am I? To have such a complicated and physically challenging disease in the age of information, in a… Continue Reading “Why I’m A #Rheumchampion”
Like what you read? Show me some love, give it a like, share with a friend.
Traveling With RA
Making any plans when you have an unpredictable passenger like rheumatoid arthritis along for the ride can be daunting. How will it behave? Will it be quiet and calm or roaring around lighting you on fire? In other words, is the trip going to… Continue Reading “Traveling With RA”
Like what you read? Show me some love, give it a like, share with a friend.
RA Unedited #4
Here I am again this morning, standing at the intersection of overindulgence and overdoing, a little neighborhood known as massive pain. The sad part is, as always, knowing I did this to myself. Not the disease that cause the symptoms to flair mind you,… Continue Reading “RA Unedited #4”
Like what you read? Show me some love, give it a like, share with a friend.
Exciting News!
When I started this journey a few years ago, I intended to share my personal experiences as I navigate chronic illness and the challenges that brings to the table. While I’ve done quite a lot of that, I’ve also leaned pretty heavily on presenting… Continue Reading “Exciting News!”
Like what you read? Show me some love, give it a like, share with a friend.
Playing Catch- When your healthcare team drops the ball
When it comes to chronic healthcare, there are a ton of moving parts. While I am a strong believer in assembling a medical team you can depend on, someone has to take the lead. That someone needs to be you. No one on your team is ever going to know your journey as well as you do.
Like what you read? Show me some love, give it a like, share with a friend.
Taking The Leap- My Latest Game of Medical Roulette
Sometimes, life with chronic disease means having to take a leap in hope of better days ahead.
Like what you read? Show me some love, give it a like, share with a friend.
Getting Back On Track
Hello Tenacious Tribe! Did you miss me? I missed you all! Sometimes balancing life with chronic illness means taking a step back from some of the things you normally do. In my last (far too distant) post, I talked a bit about that. I… Continue Reading “Getting Back On Track”
Tenacious ME 