Category: chronic disease

Being Understood

“I won’t be getting much done today or tomorrow, I might do a little laundry tomorrow but probably not much more,” I say to my husband as we talk about the plan for the week and the household needs.  “Oh, right, you have infusion… Continue Reading “Being Understood”

Who Is Responsible For Your Health?

I’ve noticed a somewhat alarming, unhelpful shift in the way we view health.  It seems that the list of people we expect to keep us healthy includes everyone from our doctors and nurses to the president and the random dude at the grocery store… Continue Reading “Who Is Responsible For Your Health?”

Living Your Best Life With Rheumatoid Arthritis

Life with rheumatoid arthritis (RA) is certainly no walk in the park. A disease marked by chronic pain, fatigue, and damage that leads to loss of mobility, the symptoms alone can be a lot to handle day to day. Being mindful of your physical… Continue Reading “Living Your Best Life With Rheumatoid Arthritis”

don’t let chronic pain destroy your relationships

We’ve all been there, you don’t feel very well, someone says something that irritates you, and you snap their head off. Not your best moment, but as we’ve all been there, generally forgivable, every now and then. But what happens when pain and exhaustion,… Continue Reading “don’t let chronic pain destroy your relationships”

Celebrating Mobility- One Year with Frank the Tank

Have you ever made a decision that change your entire life?  Approaching middle age at an alarming rate, its safe to say I’ve made a few of those, for better and worse, in my lifetime.  Few have been so life altering as the decision… Continue Reading “Celebrating Mobility- One Year with Frank the Tank”

Lessons from Homeschooling with Chronic Illness

As the country turns to a home-based education, it seems like a good time to share what homeschooling has taught me this year.  We embarked on our homeschool journey last September.  Since then we have both discovered a great deal about learning, cooperation, and… Continue Reading “Lessons from Homeschooling with Chronic Illness”

Advocating for health

Are you an advocate for health?  If you have been diagnosed with a chronic condition, or you are suffering from an undiagnosed mystery illness, you are going to need to be.  The fact is, no one cares about how badly you are doing or… Continue Reading “Advocating for health”

What Your Loved One With Rheumatoid Arthritis Wants You To Know

One of the most frequent troubles Rheumatoid Arthritis (RA) patients struggle with is being understood.  If you don’t have RA, it is a little hard to imagine what it is like.  The morning stiffness that sometimes sticks around all day.  The painful swollen joints,… Continue Reading “What Your Loved One With Rheumatoid Arthritis Wants You To Know”

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