Tenacious ME
Tackling disabling autoimmune disease with obstinance and humor.
Tag: rheumatoid arthritis
Exciting News!
When I started this journey a few years ago, I intended to share my personal experiences as I navigate chronic illness and the challenges that brings to the table. While I’ve done quite a lot of that, I’ve also leaned pretty heavily on presenting… Continue Reading “Exciting News!”
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Playing Catch- When your healthcare team drops the ball
When it comes to chronic healthcare, there are a ton of moving parts. While I am a strong believer in assembling a medical team you can depend on, someone has to take the lead. That someone needs to be you. No one on your team is ever going to know your journey as well as you do.
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Taking The Leap- My Latest Game of Medical Roulette
Sometimes, life with chronic disease means having to take a leap in hope of better days ahead.
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Getting Back On Track
Hello Tenacious Tribe! Did you miss me? I missed you all! Sometimes balancing life with chronic illness means taking a step back from some of the things you normally do. In my last (far too distant) post, I talked a bit about that. I… Continue Reading “Getting Back On Track”
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Chronic in a Crisis-
When life suddenly hands us a crisis it can be a lot to handle, especially if you are already juggling chronic illness. Getting through the disaster without completely toppling your health can be a huge challenge when life turns upside down.
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Infection Frustration
Well, here I am again, putting off infusion because I’ve got an infection. If not for the fact that I just did that two weeks ago for a different infection, I might not be feeling so frustrated. But, here we are, frustration station once… Continue Reading “Infection Frustration”
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We Made It! (a holiday recovery plan)
Is it just me or was the holiday season we just slid through a bit on the challenging side this time around? Everyone I talk to seems to say the same, chaos and confusion were the theme of the season. The theme of my… Continue Reading “We Made It! (a holiday recovery plan)”
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Handy Arthritis Tools That Reduce The Struggle
One of the keys to living a full, able life with ra is to lean on the available tools to make getting things done simpler. The energy saved not struggling to do the little things, is a precious resource, especially when you have a limited supply for the day. Leaning into arthritis tools means you will be able to do more, also precious when life can be a struggle.
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Learning to Lean-How Adaptive Aids Improved My Life
I used to look at adaptive equipment and see it as a flashing neon sign, complete with an arrow pointing at the user (me), “This person is weak” the sign flashed, “can’t do normal things” it sometimes proclaimed. I avoided using tools made to… Continue Reading “Learning to Lean-How Adaptive Aids Improved My Life”
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Stress and Chronic Illness
In a world where things are anything but simple, with a body that is anything but well behaved, its no surprise that stress plays a big part in the lives of most people with autoimmune diseases like Rheumatoid Arthritis. Between juggling responsibilities and fighting… Continue Reading “Stress and Chronic Illness”
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